J Korean Assoc Oral Maxillofac Surg 2017; 43(4): 247~255
A comparative study of quality of life of families with children born with cleft lip and/or palate before and after surgical treatment
Christian I. Emeka1, Wasiu L. Adeyemo2, Akinola L. Ladeinde2, Azeez Butali3
1Department of Oral/Maxillofacial Surgery, Lagos University Teaching Hospital,
2Department of Oral/Maxillofacial Surgery, College of Medicine, University of Lagos, Lagos, Nigeria,
3Department of Oral Pathology, Radiology and Medicine, College of Dentistry, University of Iowa, Iowa City, IA, USA
Wasiu L. Adeyemo
Department of Oral/Maxillofacial Surgery, College of Medicine, University of Lagos, Lagos 101014, Nigeria
TEL: +234-802311588 E-mail: lanreadeyemo@yahoo.com ORCID: http://orcid.org/0000-0002-0257-7853
Received December 29, 2016; Revised March 6, 2017; Accepted March 28, 2017.; Published online August 31, 2017.
© Korean Association of Oral and Maxillofacial Surgeons. All rights reserved.

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 Abstract
Objectives: The aim of this study was to compare the quality of life (QoL) of parents/caregivers of children with cleft lip and/or palate before and after surgical repair of an orofacial cleft.
Materials and Methods: Families of subjects who required either primary or secondary orofacial cleft repair who satisfied the inclusion criteria were recruited. A preoperative and postoperative health-related QoL questionnaire, the ‘Impact on Family Scale’ (IOFS), was applied in order to detect the subjectively perceived QoL in the affected family before and after surgical intervention. The mean pre- and postoperative total scores were compared using paired t-test. Pre- and postoperative mean scores were also compared across the 5 domains of the IOFS.
Results: The proportion of families whose QoL was affected before surgery was 95.7%. The domains with the greatest impact preoperatively were the financial domain and social domains. Families having children with bilateral cleft lip showed QoL effects mostly in the social domain and ‘impact on sibling’ domain. Postoperatively, the mean total QoL score was significantly lower than the mean preoperative QoL score, indicating significant improvement in QoL (P<0.001). The mean postoperative QoL score was also significantly lower than the mean preoperative QoL score in all domains. Only 3.2% of the families reported affectation of their QoL after surgery. The domains of mastery (61.3%) with a mean of 7.4±1.8 and finance (45.1%) with a mean score of 7.2±1.6 were those showing the greatest postoperative impact. The proportion of families whose QoL was affected by orofacial cleft was markedly different after treatment (95.7% preoperative and 3.2% postoperative).
Conclusion: Caring for children with orofacial clefts significantly reduces the QoL of parents/caregivers in all domains. However, surgical intervention significantly improves the QoL of the parents/caregivers of these children.
Keywords: Orofacial cleft, Caregivers, Quality of life, Surgery


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31 August 2017
Vol. 43
No. 4 pp. 213~285

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